PROGENI Parkinson's Research: The Organized Genetics Initiative Parkinson's Research: The Organized Genetics Initiative
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PROGENI Cares: Case Control Study
In 2004, the PROGENI study launched a new part of this important research study. We are now recruiting individuals who have Parkinson’s disease (PD), regardless of whether or not they have any other family members diagnosed with this devastating disease. Additionally, we are also recruiting “healthy” individuals over the age of 55 to participate in the study as a matched control for someone with PD.

To be eligible to participate in the PROGENI Cares study, individuals must either:

  1. Be diagnosed with Parkinson’s disease


  2. Be age 55 or older and have no neurological problems, such as Alzheimer’s disease, tremor, or stroke and reside within driving distance of the Indiana University Medical Center in Indianapolis, IN.

Study participants who qualify will be asked to undergo a one time clinical examination at the Indiana University Medical Center in Indianapolis, IN (or one of several other sites across the US, depending on location of residence). This study visit consists of answering questions about the individual’s experience with PD, including discussion of the symptoms they experience, their response to PD medications, activities of daily living and mood. Individuals who do not show symptoms of PD will be asked the same questions so comparisons can be made between persons with PD and those who do not have PD. In addition, all participants will be asked questions about their medical history, mood, mental status and activity level. Participants will also be asked to provide information about where they have lived and the work they have done. All participants will undergo a brief neurological examination by a movement disorder specialist and a small sample of blood will be drawn. All of this will be done at no cost to the participant.

A voluntary autopsy program is also available to all study participants who complete a study visit. . If you are interested, you can learn more about the importance of autopsy.

Download a brochure with more information about the PROGENI Cares study. This brochure require Acrobat Reader.

Individuals interested in learning more the PROGENI Cares research study should contact the PROGENI Cares project coordinator at 1-888-830-6299 or by email at



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